Navigating the South as a genderqueer Christian androgyne. Trans* and neurodiverse. Educator & Spanish speaker.

Sensitivity

Today I found myself mourning in an entirely unexpected way.

I was tucked into bed for an afternoon nap, and rather than curling up to sleep, I started shopping on the Lunapads site, and… I started feeling tearful, in a cathartic way. I felt like it was helping me process grief, which is, I suppose, an odd thing to feel about shopping for reusable menstrual pads.

It’s been a rough couple months for my reproductive anatomy and company. I turned up at the gynecologist in August with a UTI, a yeast infection, and bacterial vaginosis, concurrently. I already had a highly sensitive system; then I’d had lots of sex with a new partner, been exposed to lots of new chemicals and materials we were using for safer sex, and had an allergic reaction to one of them (unsure which). My vagina (and everything around it) was pretty unhappy. (And so was I. You can imagine what it was like to have all three of those infections at the same time.)

I turned up at the doctor again a few weeks after finishing treatment, having symptoms again, and, lacking any true infection, I was told I may actually be irritated by my own cervical mucus. It’s a mild oversimplification to say I’m allergic to myself, but that’s about how much sense it makes. I had never heard of anything like that (and my Googling hasn’t made me much wiser). I was prescribed a course of vaginal antibiotics, as my gynecologist said there is sometimes bacterial involvement. Depending on how I reacted to them, he said, I might go onto prophylactic antibiotics long-term, or have my cervix cauterized to reduce the amount of mucus it produces.

The antibiotic turned out to be metronidazole, which is carcinogenic in animals in long-term use. The fact that I was willing to put five doses of that into my vagina should probably tell you a lot about how hopeless I was feeling, and how unappetizing the thought of cervical cautery is.

So things are changing. My list of allergies and sensitivities is now up to disposable pads/pantyliners, conventional lube, most soap, spermicide, and my own cervical mucus.  Thankfully I didn’t seem to be allergic to the antibiotics, and I’m now attempting to eliminate any and all potential irritants in hopes that I can reduce my discomfort and avoid cauterization. I switched over to a DivaCup and reusable pantyliners quite awhile ago, but right now my skin is so delicate I don’t even dare use my DivaCup. I’m having to step back, reevaluate, and throw out things that aren’t working anymore.

So there I was today on this website, buying more pads to compensate for not being able to use the Divacup, and I started feeling like I was going to cry. Here was everything I could need for what my body is going through: organic cotton pads, wet bags, laundry bags, rinse bottles, detergent. It wasn’t relief I was feeling, exactly, though I am very relieved and grateful that there are resources out there to deal with cranky bodies. It was more that finding myself there was an acknowledgment of the ways my body is changing, and that I’m facing them, dealing with them.

It is frightening to me to think that you can break your own body in irrevocable ways, that you can do things to it that cannot be fixed. That it can break down in ways that cannot be reversed. As careful as I am with my reproductive system, I’ve apparently exposed it to enough things to bring it to this point–even though those things (pads? lube? soap?) are mostly innocuous to almost everyone. And meanwhile my joints are getting more painful, my sensory problems are getting stronger, my spine is curving more. I’m now taking medications to ameliorate side effects from other medications. I had a period so painful this week that I considered going to the hospital. I’ve realized in the last several years how wrong the impression of medicine I had as a child is–there is very little that can be treated without scar or price, and there are many things that cannot be cured.

It’s a funny thing, as someone who spent so many years suicidal, to be so afraid of my own mortality and fragility now.

However, I’m not here solely to complain (surprising, right?). I have recommendations, and I have questions, because I know there have to be people out there dealing with the same things. I want to tell you how I’m dealing, and see how you are.

First, if you’ve ever been told your own bodily fluids are an irritant to you in any way, or if you know anything about such, I’d like to hear about it.

Second, here’s a rather exhaustive list of everything I’m using to deal. I’m going to be linking to a lot of products and companies–I’m not in any way being compensated by any of them, and I can’t say they’ll work for you… I just want to have ideas out there for anybody going through the same sorts of things.

  • Soap: DivaWash is the only non-irritating cleanser I’ve found that I can use on my genitals. It’s botanically based, it smells nice, it’s an effective and gentle cleanser. I’ve heard lots of recommendations not to use any soaps on the vulva at all, and especially not inside the inner labia, but my skin overproduces keratin, so it’s necessary for me to use a cleanser to keep inclusion cysts and abscesses to a minimum. I get mine at Whole Foods, but you can order it on the Lunapads site too. (I have sensitive skin in general; I use castile soap (Dr. Bronner’s) on the rest of my body, generic sensitive skin shaving creams, and mineral salt deodorant.)
  • Cloth: I already have a couple Lunapads (very kindly sent to me in return for publishing one of my blog posts on their site) and I have more on the way; I like their system of a base pad with changeable liners that go atop it. (They even have wing extenders so I can wear them more easily with my boxer briefs!) I also have many pads and liners from Randumosity; the plastic snaps are kinder on my fingers and the velour liners feel amazing on my skin. I know GladRags is another cloth pad company, and many independent folks who make pads and liners can be found by Googling and looking on Etsy. There are lots of styles of pads and liners that work differently, and you’ll probably like one above the others.
  • Detergent: I use All’s “Free & Clear” detergent, but I’m considering switching to a washing soda or similar to avoid chemicals and get my clothes and pads cleaner. If you have favorites, please let me know.
  • Stain remover: I recently tried Ruby’s Red Wash to help remove stains from my pads–they very kindly sent me a travel-sized bottle to try after hearing about my allergies. It definitely works! Amazingly so, really–it downright wiped out some fresh stains, and even got some very old, set-in stains out. And so far, I don’t think it’s an irritant.
  • Lube: I use Emerita lube, but I think this is also starting to irritate me. I’ve heard aloe suggested, but I think this is also an irritant for me. If you have suggestions, I would appreciate them.
  • Rinse, don’t wipe: I’ve noticed some toilet paper irritates me more than others, and I’m less irritated when I manage to wipe as little as possible. I’m trying to get my hands on a rinse bottle (these are spoken of favorably) so that I can just blot dry afterward.

Man. I’m making a resolution to write more happy blog posts.

Comments on: "Sensitivity" (29)

  1. Ouch, I really feel for you! I’m allergic to a whole bunch of things too, three of the more difficult ones are bleached pads or other intimate products, thrush, and my own sweat. My skin will ulcerate and then slough, leaving raw bleeding wounds. I don’t know what else you’ve tried already but I find a bath with some Apple cider vinegar in it settles my skin a lot, ditto oat ‘milk’. Honey soothes open wounds best for me. In flare ups I wash with vitamin e cream as a soap. Def recommend rinse and pat dry rather than wipe, I also use a vit e cream or a little evening primrose oil straight after to soothe. In non intimate areas a quality barrier cream can be really helpful for irritated skin. Lube I’ve found sylk doesn’t irritate me. I hope something there may be useful for you? I’ve no idea why I’m allergic to these things, neither does my doc. I am planning to see a specialist dermatologist soon and see if they have any suggestions. Best wishes!

    • My goodness, it sounds like you’ve got far more sensitive skin than I do! I feel for you too! I’ve tried oatmeal baths and found them soothing, but I never would have thought to try vinegar. Thanks so much for the ideas, good luck, and feel free to let me know if your dermatologist has any brilliant ideas!

      • You’re welcome! I’ll keep you posted if I come across any other brilliant ideas :)

      • So, saw the dermatologist recently and the advice has been interesting – there’s such a thing as a ‘drug erruption’ which is a common allergy to mild drugs such as panadol, occurs up to 72 hours after exposure, and shows up only through the nasty irritation/skin peeling in the genitals. That’s something to watch for. Another point – if you’re prone to hives (like me) than you can get them in any area of the body where the skin is soft and there’s friction – armpits and genitals again… rather than the bumps we’re used to on the torso, instead the whole area can swell and become painful and irritated. Increased doses of antihistamines and cold packs are the go then. Hope that might be helpful to you.

  2. i’m so sorry you’re dealing with all of this, but good for you for taking these steps to try to heal your own body. i’m having some health issues of my own right now, and while they’re not the same, i can really relate to a lot of what you’re feeling.

    if you feel okay about inviting more folks in to read this post, let me know and i’ll share the link on our fb page. i know lots of our customers have experienced complex/confusing/frustrating issues related to irritation, infection, and so on who may be able to offer some information or support.

    take good care.

    • Lisa, you are always the sweetest–thanks for everything. I would love if you would share the link. And I need to go fan your Facebook page!

  3. I’m so sorry to hear about your triple infections and sensitivity. I’ve had two of those infections, but at separate times, and the thought of them and the pain was all-consuming.

    I switched to cloth pads after my first child was born, after using disposable pantiliners throughout my pregnancy. The pain and chafing was so bad I could hardly bear to sit. No problems at all with cloth, and I will never go back! I’m a lunapads user-never tried other companies, probably never will, I am very happy with their products.

    I have 2 peri-bottles from the 2 times I gave birth (our hospital gives them to new mothers), and use them frequently when I have my period to wash. Much gentler than paper. I guess more like a bidet? Definately worth the few dollars they cost online!

    Does your doctor think that your allergies can be reversed? I’m not generally a fan of holistic medicine, but I’ve heard people have had some success with naturopaths and/or elimination diets to reduce symptoms.

    • I am honestly not sure what my doctor thinks about that… if he has any idea. I’ve been an interesting case in several regards for him over the years! I probably should look at my diet…

  4. My 1st thought is this – organic doesn’t mean safe. Try to stay away from dyes on anything that touches your genitals. Unscented, clear glycerin soap or similar body wash may work better for you. For laundry, I like Ecos free & clear detergent or Method free & clear laundry stuff. All gives me a rash. Consider also what you’re eating. Your own ph can be changed based on diet. I find yogurt w live cultures, hen eaten daily, keeps the yeast in control & my irritation down. Yeast can be at sub-clinical levels & still cause probs. Rinsing instead of tp after urinating helps so much more than one would think. You don’t need anything special for it at home – even a ceramic creamer worked for me in a pinch once. External only for everything is best. I would get many additional opinions before agreeing to getting any part of me cauterized.

  5. Wow, I’m sorry to hear you are having all these problems! I also have a sensitive genital area, although so far it doesn’t seem to be as bad as yours. I use seventh generation unscented laundry detergent and dryer sheets, Lunapads/Diva Cup for my period, and the only lube I have found that doesn’t instantly burn on contact is pjur med natural glide water-based personal lubricant. It is a German product and their US website is http://www.pjurmedusa.com. I have been using it for years now with no problems! I hope it works for you! P.S. I loved the part about your realizations of the fragility of the human body and the inadequacies and sacrifices inherent to medicine…I work in a hospital and those two truths stare me in the face every day.

  6. I’m sorry you’re dealing with all of these things! A few thoughts come to mind…first, in terms of products: I personally use Seventh Generation Free & Clear detergent & fabric softener, which is very gentle and doesn’t seem to leave any residue. It’s unscented, although I haven’t had any problems with their scented stuff, either. I tend to be with sensitive to strong smells, which is why I don’t use conventional stuff. I’ve also had good luck with Mrs. Meyers detergents, which are scented, but also very gentle. And as for lube, I’d use Hathor over Emerita. Emerita contains sucrose, which is sugar. Any sugar is very irritating for the vagina. In terms of safer sex products, I’d steer clear of spermicide & spermicide coated things (condoms, etc). You may want to try latex-free condoms, or lambskin ones (although not lambskin ones if you’re not sure if your partner is STD free).

    • Oh I am definitely definitely like 300% allergic to spermicide and it is NEVER going anywhere near me again! (Which is a shame, because I have a diaphragm, but… ah well!) I’m looking into unlubricated condoms (thankfully dams don’t come pre-lubricated!).

  7. Darn, I got cut off…sorry! Another thing that springs to mind in terms of general health is perhaps that you may have an intestinal candida problem. There isn’t really a medical test for it, from what I understand (you have yeast in your intestines anyway, so it’s difficult to tell if there’s too much, unless you know the symptoms), but consistent or chronic vaginal yeast infections and bacterial vaginal infections can both be signs of an intestinal problem. I’ve dealt with it myself, and I have a friend who’s still battling it (unfortunately, there’s not a quick way to rid yourself of intestinal yeast growth…it’s diet change, mostly). Anyway, imbalanced gut bacteria causes an overgrowth of yeast. There are a lot of books on the subject…”Guts to Glory” is a good one. The main idea is to go entirely sugar-free, while simultaneously eating & drinking lots of fermented & cultured foods (kombucha tea, kimchi, pickled stuff, etc) & taking probiotics. I’d check that out…I’ve heard that improving gut health can help with allergies, even. :) Good luck! And hang in there!

    • And, that is really, really interesting about the intestinal issues… I will remember that. Not that I need an excuse to drink more kombucha. (:

  8. I haven’t tried it, but my local woman-owned erotic boutique carries Bedroom Kandi Natural Intimate Lubricant–which looks much better than what you’re using, since most of the ingredients are in food. Vegan, too. Info here: http://www.toolshedtoys.com/details.php?prodId=1786&category=13&secondary=&keywords=

    Also consider reusable wipes–like reusable pads, but for toilet use. I plan to make some for myself, but I just found out that there are other options available:
    http://www.cheekywipes.com/
    http://www.etsy.com/listing/71952321/cloth-baby-wipes-starter-kit-3-dozen

    Peri bottles are great; I haven’t used one for rinsing yet (don’t have one of my own), but I’m pretty sure my mother uses hers that way and loves it.

    As for detergent, try vitacost or a health food store. I’ve had allergic reactions to some big brand detergents in the past, and the natural detergents I found at the health food store haven’t given me any problems yet (and they smell better).

    I hope this helps!

  9. For looking for cleaner/laundry detergents with low toxins/irritants check out this database.. http://www.ewg.org/guides/cleaners

    For checking out skin care products of all types and their toxins and irritants check out this database.
    http://www.ewg.org/skindeep/

    These should help you be able to make choices that will prevent toxins and irritants that should help you heal.

  10. WOW. Y’all are unbelievably helpful–thank you so, so much. Not that I’d wish it on anybody, but it’s so nice to hear from people who’ve had to deal with this. Great ideas all around.

    That triple infection was actually the first time I’ve ever had a diagnosed vaginal infection of any kind, and only the second UTI. In fact, I went 2.5 weeks with all 3 infections (!!!) before going to the gyn, because the symptoms weren’t as bad as my first UTI!

    Also: while I was waiting for that appointment, I used garlic–one peeled clove inserted vaginally, changed every 8-12 hours. Killed the itching immediately, and it was gone as long as I kept the garlic in. What a lifesaver. I’ve heard of plain yogurt used internally too, but somehow garlic sounded better at the time.

  11. Bless your heart for sharing your experience and these health-centered resources. The Universe is listening, watching, protecting, loving up on you and yours. <3

  12. I am so sorry to hear about your sensitivities. I had a huge allergic reaction this year and I had to ice my groin for about a week until the swelling went down. It is so awful to have that very sensitive area “angry”. The only things that really helped me was to take some baths with baking soda (vinegar was much too harsh) and I went to see a gyno that specialized in natural medicine; he gave me an awesome cream that soothed the area. He was the one who suggested switching to cloth pads because the disposables sucked the natural moisture away and with all the chemicals that are used, just made it worse. I’ve been much much better since I’ve done those things.

    My thoughts are with you…it’s truly a hard thing to go through. Hope some of our suggestions help.

    Erin

    • I always thought of disposable pads as inert until I developed an allergy to them, and a great gynecologist at my university’s clinic gave me a lecture about all the chemicals and bleach involved in pad manufacture (and tampons too!). Even if I weren’t allergic, I’d be none too keen on using them after that.

  13. You should consider a candida cleanse. I had a lot of issues including vestibulitis, fatigue, inflammation etc and it really traced back to my digestive health. Candida can be systemic and could be why you’re feeling overall quite aweful. Also, you should always only use water to wash your pelvic area, not soap. As soon as I started doing that, my UTI’s virtually disappeared. And any time I feel a tingling beginning of UTI, I take homeopathic cantharis, and it’s gone the next morning. Good luck

    • Oh… and you didn’t list it, but I hope you’ve also tried using non-latex condoms.

    • It’s been really interesting to hear about systemic yeast problems from several people now!
      Using soap on my genitals is a trade-off… my skin produces too much keratin (I have keratosis pilaris in other areas of my body) and I find that if I don’t clean thoroughly with some sort of cleanser, I have increased problems with inclusion cysts and abscesses. So far the DivaWash has been working really well as a non-irritating cleanser.

  14. oog. that does not sound fun. :(

    have you tried using soap nuts rather than laundry detergent? it’s about the only thing i can wash my underwear with that won’t irritate my genitals. they’re cheap if you buy big bags of them and they get my clothes cleaner than detergents do.

    also, i would be wary of diva wash. it contains cocamidopropyl betain, a surfactant derived from coconut oil and dimethylaminopropylamine. there seems to be a bit of controversy over whether cocamidopropyl betain is a skin irritant, but some of the ingredients it gets processed with can remain in the final product (like diva wash, for example) and mess up your skin. if you google “cocamidopropyl betain,” interesting stuff will show up (that’s what i did). so, yeah. something to think about.

    i use handmade bar soap. it’s expensive, but the bars last FOREVER so it’s actually pretty cheap. plus, if you know the people who make it, you can make sure there are no weird chemicals in your soap.

    i hope you feel better soon!!!!

  15. I’ve only begun following your blog and it must be terrible to have all those issues at once. I can recommend a laundry detergent called Country Save. It is dye free, sent free, great for cloth pads and great for allergens / sensitive skin folks. You can order some of the trial packs on Amazon for less than a dollar. Hope you are feeling better!

  16. I’ve had multiple problems with bacterial vaginosis – a happy vagina it does not make! My first experience took 3 rounds of meds to gain control again. Needless to say I’ve been careful since in taking care to wash everything that touches my vulva.

    Spermicide is really bad for you – it is irritating to everyone, some more than others. Avoid at all costs if possible. Remember its ingredients designed to kill something that’s alive – yuck!

    Lube – the lube you’re using and linked to has glycerin — which can lead to yeast infections! A lot of the lubes in the market has that as an ingredient. I’d recommend using Sliquid brand. They are all glycerin free and paraben free. From my pretty extensive research, they are the best in the market.

    For detergent, I use Seventh Generation Free and Clear. It’s very mild and its biodegradable — so its more natural. Something to keep in mind, technically our grandparents and their parents didn’t have laundry detergent. They used water and maybe some basic soap. It’s not required but it can be useful if you have a stain.

  17. Hi! I realize this is an old post, but I also have allergies a lot and so wanted to share something my husband and I have found helpful. We use olive oil or coconut oil for lubricant and it works great, though of course it can be a bit messy. And we wash our condoms with soap (natural soap) so they won’t have any chemical lubricants on them. Of course, I think condom boxes may say that you shouldn’t use vegetable oils, but we’ve done fine with both extra virgin olive and coconut oil.

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